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Marilee J. Layman

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05:21 pm: And What Day is This?

I took the trash & recycling out on Thursday and got an email from my rheumatologist that I could pick up a narcotic (they don't refill) near her office. I did that on Friday and on the way home, stopped at a restaurant I really like, but their ramp is a disaster. I made it inside, ate, read from the Kindle, but when I came outside, near the bottom, I lost stability. I was able to grab the side of the van instead of falling, and then carefully went down the rest of the ramp (and a bit of unmarked ramped asphalt) holding the van. I came home and took narcotics and went to bed. I've been doing that all weekend. I've been up three times, two hours each time. Today I was up three hours earlier and now three hours and I plan to go back to bed.

I realized earlier that I'd spent a day and a half without food, the rehydration fluid, and the meds. I've been working on that.

I'm now down to seven late newspapers, although my hands hurt like crazy. I think it's the catching the van that did that. I had to stretch the fingers and hand and hold on tight. I'm pretty sure I'm not changing the sheets today. I hope to do it tomorrow or the next, but I do have things I need to do Monday through Thursday.

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Comments

[User Picture]
From:kip_w
Date:January 2nd, 2012 02:00 am (UTC)
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Would soaking your hands in cold water while you watch TV help any? My sympathy on the fall, or almost fall. Either way, sympathy.
[User Picture]
From:mjlayman
Date:January 2nd, 2012 10:59 pm (UTC)
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That might help, thanks!

(And I really like your card!)
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From:fimbrethil
Date:January 2nd, 2012 03:00 am (UTC)
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A lot of that sounds really scary. I hope you get back to feeling well soon.
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From:mjlayman
Date:January 2nd, 2012 11:03 pm (UTC)
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I think I'm going to call the ADA folks in their city and see about the ramp. It's a very popular place, so I suspect they know it, but aren't doing anything about it. Smoothing it and putting railings on would be great.
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From:dd_b
Date:January 2nd, 2012 05:52 am (UTC)
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It's been sounding to me for a while that things are piling up; and just now that maybe you're having trouble keeping up partly because of successive damage from relatively little things done by pushing yourself trying to keep up. Is there a way you could get somebody to help for half a day or something, get caught up and not have to push yourself so hard, and maybe get more time for things to recover?
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From:mjlayman
Date:January 2nd, 2012 11:04 pm (UTC)
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Yeah, entirely possible. I'm making a list because Medicare will pay for someone to come do that if I need the help. One of my doctors would need to request it.
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From:xeger
Date:January 2nd, 2012 01:58 pm (UTC)
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FWIW, my hands always feel dramatically worse when I've let them get cold. Wearing fingerless gloves or gloves anytime they might be exposed to the cold[0] helped dramatically.

[0] ... for remarkably warm values of cold, at that ... 60F was definitely 'cold'
[User Picture]
From:mjlayman
Date:January 2nd, 2012 11:07 pm (UTC)
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I had gloves on today but my schedule has changed -- the wind chill will be in the "single digits" tomorrow and Wednesday, so I won't go out. I ordered some Isotoner gloves with the tips missing to use at home (supposed to help the pain) and they sent Large when I need Small. I'll have to send those off for an exchange.

(I'm having trouble curling my hands in the morning, which is common for this point of arthritis.)
[User Picture]
From:xeger
Date:January 2nd, 2012 11:16 pm (UTC)
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(I'm having trouble curling my hands in the morning, which is common for this point of arthritis.)

It's tendonitis, not arthritis for me -- but definitely been there, done that (these days particularly if I end up sleeping with one hand out for the cat to curl around).

I'll be quite curious to hear how the isotoner gloves do -- I haven't tried something like that yet (and can't quite bring myself to wear kid gloves ;>)
[User Picture]
From:mjlayman
Date:January 2nd, 2012 11:33 pm (UTC)
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I'll let you know how it works. I know a lot of people who do wear the Isotoner gloves for different planning.

I saw the rheumatologist a few weeks ago and she suggested I get a capsaicin tube, but I wash my hands so often that it's hardly worth putting that on, so I hope the Isotoner will be better.
From:dewline
Date:January 2nd, 2012 02:31 pm (UTC)
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Hoping you're getting back on track, health-wise...?
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From:mjlayman
Date:January 2nd, 2012 11:08 pm (UTC)
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Well, I'll never be well, and I'll always have problems, but right now, things are worse than usual.
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From:serge_lj
Date:January 2nd, 2012 04:07 pm (UTC)
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One day late, but I want to wish you a Happy New Year, Marilee.
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From:mjlayman
Date:January 2nd, 2012 11:08 pm (UTC)
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Thanks! You too!
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From:fledgist
Date:January 2nd, 2012 07:16 pm (UTC)
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Like Serge, a day late, but also wishing you a Happy New Year.

The above does sound like a seriation of small things that can add up to a lot of trouble. You have my sympathy.
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From:mjlayman
Date:January 2nd, 2012 11:10 pm (UTC)
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Thanks! Happy New Year to you!

The doctors tell me to expect for medical things to get worse, and since I live alone, dealing with things here is getting harder. Sometimes I can handle it, sometimes I can't.
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