?

Log in

No account? Create an account

Marilee J. Layman

Previous Entry Share Next Entry
08:43 pm: Reynaud's Syndrome
I couldn't get my feet into my shoes today, so I wore my slippers to see the rheumatologist (people wear flipflops to drive...). She agreed that my feet have massive edema and told me it was probably from the BP med that nephrology prescribed for me on 2/19. (lizzibabe, remember how I had to leave Panera early a day later?) I've emailed the nephrologist and we'll see if she wants to change the med or dose, or see me.

The rheumatologist also definitely diagnosed me with Reynaud's Disease, which she'd been thinking about for a while. My fingernails were purple in her exam room today and she decided that the "electrical" feeling in my thumb was the final step. I also get to stop one of the stroke meds.

I yawned my way home and after sitting in the recliner for a few minutes, just got the pillow and duvet and Spirit and I slept until 6:30pm. She would have liked to sleep longer.

Michael Steele, the RNC chairman, came into the job when their money was $22 million. The party raised $96 million since then, but the current amount is $10 million. How'd that happen? He used very expensive items for himself.

Do you know what you're eating? FDA says there's a lot of fraud out there, but they don't have time to check everything.

And to go along with the sleep apnea discussion, here's the way to determine if something is a disability and I think it shows that for most people, at least, it's not a disability.

Tags: , , , , , ,

Comments

[User Picture]
From:davidgoldfarb
Date:April 1st, 2010 01:13 am (UTC)
(Link)
I didn't feel like speaking up to contradict in the other thread, but I have to say that with my machine (now a BiPAP) I don't feel disabled in the least.
[User Picture]
From:mjlayman
Date:April 1st, 2010 03:26 am (UTC)
(Link)
Yeah, as I said, I think most of the people I know who have it and use the machine are fine.
[User Picture]
From:mplsvala
Date:April 1st, 2010 02:21 am (UTC)

Reynaud's Disease

(Link)
And the fun just never stops, huh? It is amazing how well you deal with it all. Go you!
[User Picture]
From:mjlayman
Date:April 1st, 2010 03:25 am (UTC)

Re: Reynaud's Disease

(Link)
Well, I've probably had this for a while, it just didn't quite get diagnosed. There's a fair amount of rheumatological diseases that don't have lab tests to show whether you have them or not.
[User Picture]
From:soon_lee
Date:April 1st, 2010 08:12 pm (UTC)

Re: Reynaud's Disease

(Link)
Will knowing the diagnosis help, medication-wise?
[User Picture]
From:mjlayman
Date:April 1st, 2010 09:42 pm (UTC)

Re: Reynaud's Disease

(Link)
Well, mostly you have to be good about what you do.
(no subject) - (Anonymous)
[User Picture]
From:mjlayman
Date:April 1st, 2010 03:27 am (UTC)
(Link)
I was already having trouble with my feet then -- not this bad -- and that's why I had to go. Oh, I'm sorry for your dad. Mine kind of blends in with everything else.
(no subject) - (Anonymous)
[User Picture]
From:mjlayman
Date:April 2nd, 2010 09:07 pm (UTC)
(Link)
Ow! Quite a joke! I hope to be careful enough not to lose bits. I already pay attention to my hands and feet because of the gout and arthritis, so I plan to just add in the Reynaud's.
[User Picture]
From:agent_mimi
Date:April 1st, 2010 07:58 am (UTC)
(Link)
Sleep apnea is not a black and white issue. No, not all people who have SA are disabled, but SOME people who have SA are on disability. Maybe it's because it exacerbates their COPD, or because they have associated narcolepsy, or because they have central sleep apnea which isn't controlled well by xPAP.

That's true, by the way: Some people are not fully helped by xPAP. It's a continuum where some are completely helped, some partially helped, some not helped at all. No health condition manifests itself identically in every person. Just the differences between obstructive SA and central SA alone mean it's a complex issue.

Nothing I've said on the issue has been outrageous, a lie, or ridiculous, yet you've made what I consider to be very strong implications that I have lied about my own personal struggle with sleep apnea. You disbelieve my experiences in favor of the experiences of others that support your preconceived notions.
[User Picture]
From:mjlayman
Date:April 1st, 2010 07:25 pm (UTC)
(Link)
No, I think you are reading me wrong. I keep saying that most of the people I know who have sleep apnea do fine with a machine. If you went through the SSA framework, you'd see that anybody who can make $12K or more doesn't have a disability.
From:(Anonymous)
Date:April 2nd, 2010 03:02 am (UTC)
(Link)
Sorry to hear about the Reynaud's Disease. Hopefully, knowing about it will make a difference.
Interesting article about food fraud. When I first saw the headline, I expected something different (such as misrepresenting the amount of calories etc.), but this is worse. Although, that catfish from Vietnam that's mentioned in there is really quite taste. Had it, liked it a lot. Although again, getting your fish from that far away leaves a really large carbon footprint.
Doris
[User Picture]
From:mjlayman
Date:April 2nd, 2010 09:10 pm (UTC)
(Link)
Yeah, thanks, I'll have to pay attention to my extremities.

I don't think it's so much that the catfish wasn't good -- after all, people didn't notice -- but just that it was mislabeled and probably priced higher than it would be if people knew what it was.
Powered by LiveJournal.com