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Marilee J. Layman

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06:34 pm: The Nephrologist
We went over my labs from Wednesday and the BUN is back where it should be and the GFR is up three points, but most of the other kidney-specific labs are worse. She says the BUN went up because of the prednisone and I'm not getting enough protein to repair the body so I have to go up to 50gr/day even though it will make me spill more protein. I really need to get off the prednisone, but it's making my permanently-swollen right eustachian tube open and I can hear better. Better hearing is not as important as getting off the meds.

She ordered a generic Fosamax -- not the one I should have, but the only one on the Medicare formulary. The one she ordered is supposed to be taken every week and has a fancy delivery system to make sure you take it that way. I'm going to take it every two weeks. She trusts me to do it, and I'll set it up by putting the dates on the cardboard, but it is a little weird that only the one dosage is in the formulary. I have enough Vitamin D in my multivitamin.

I do a batch of labs every two weeks indefinitely and see the nurse practitioner in two months on a day that the nephrologist is also there, so they can consult (they're short of nephrologists -- I waited an hour in the exam room to be seen) and was put on the wait list for her for four months.

Before I left today, I put part of a can of wet food on a dish and made sure I covered all of it with the innards of a pouch and when I got home, it was all eaten, so I'll do that tonight and see who's eating how much of it and continue/adjust on that basis.

I hurt like crazy today, probably from sitting up for so long in a straight chair, so I'll be taking time in the recliner as well as online and narcotics so I can go to library bookgroup tomorrow.

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Comments

From:(Anonymous)
Date:May 16th, 2009 03:48 pm (UTC)
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I hope you're not hurting (so much) today and can go to library bookgroup. And, hopefully, you can go off the prednisone soon.
Take good care,
Doris
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From:mjlayman
Date:May 17th, 2009 12:54 am (UTC)
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We had a difficult day and I'm going to read email and post and then sign off. Assuming the prednisone taper I'm doing works, I'll be off in 14 weeks. But I've been on high-dose before and it took four tapers to get all the way down.
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