October 17th, 2008

20111112, Marilee

Out On A Round

I left the house with checks to deposit for Soren (and then I got money for next week from the ATM), a book to leave at the library, two packages to mail, and the list of what labs I should have. I deposited the checks, got money, dropped off that book and picked up two more I had on hold, mailed the two packages, went to Kaiser and got more amoxicillin and my labs, and then to Red Robin for dinner. I had an Asian salad -- basically just salad mix with red peppers, grated carrots, mandarin oranges, and a sesame-soy glazed chicken breast. It was very good. Then when I picked up the mail on the way in, I had a package -- another pair of pants to try. So I came back with just about the same volume of stuff I left with, just all different stuff.

The high today was 63F and I wore my standard winterwear -- tie-dye cotton knit top & cotton knit pants -- but I saw young women wearing sleeveless spray-on tops and other older women wearing coats. It's supposed to still be in the low 60s by Monday, so I can wear my spring/fall coat. We have very short springs & falls in the DC area and I wear the coat maybe ten times a year. At that rate, it'll outlast me.

I filled the birdfeeder when I got home and left the sliding door open for a while so Shiva could smell the outdoors. I finally gave up and shut it. I think it's time to turn on the heat, too. The cats are mad at me. They have a full dish of dry food from the last three days and I'm not giving them more until they eat most of what's there.
20111112, Marilee

Your Symptoms Are Real: What to Do When Your Doctor Says Nothing Is Wrong by Benjamin Natelso

I originally read a WashPost article by Dr. Natelson in the Outlook section. I've had three situations where the doctors said nothing was wrong and instead they were all wrong. If I hadn't had other doctors, one situation would have killed me, one would have left me deaf, and one would have given me much more gout pain. So his Outlook article interested me and I tried to get his book from the library. We don't have it, but after some time, it came in via InterLibrary Loan. The interesting part is that our county is one of the richest in the state, but the book came from Lonesome Pine Regional Library in Lee County, in a much more rural area.

It wasn't quite what I was expecting. He talks almost entirely about Chronic Fatigue, Fibromyalgia, Interstitial Bowel Disease, Temporomandibular Disease, and Multiple Chemical Sensitivity Syndrome. I still skimmed the book.

He starts out talking about the tests doctors will do to try to determine what's wrong, and then how to get second opinions. He talks about the syndromes/diseases I listed above and how he thinks they work and therefore, where the best relief is. He covers recent and current trials on medications and behavioral therapy for those diseases/syndromes. He finishes up by talking about complementary medicine and examining quackery.

I have fibro, but it was diagnosed by the rheumatologist who insisted that even though the pathology on the bump came back "gouty tophus," it wasn't gout (my hands weren't red and swollen). There's not a lot to do about my fibro because I have other things wrong with me that mean it can't be treated. I didn't get a lot from the book, but it may very well help someone who has an "invisible disease."